Hlaupastyrkur
Charity

Cardio-Facio-Cutaneous (CFC) syndrome in Iceland
Total collected
24,000 kr.
Pledge count
6
CFC syndrome is a rare genetic condition, it´s so rare that there are only around 1 in 810.000 people in the world that have it. There are only three people in Iceland that have been diagnosed with CFC. Breki was born in 2004 and was the first one diagnosed with the CFC syndrome in Iceland. By supporting this charity, it will enable the beneficiaries to fund research into this condition allowing us to better understand it and hopefully provide the means to develop medicine to cure those individuals that are affected by it.
Participant that support this charity
New pledges
Pledge history
Gunna frænka
Amount5,000 kr.
K.axelsdóttir
Amount5,000 kr.
Erna Matthíasdóttir
Amount3,000 kr.
Ragnheidur Jona Jonsdottir
Amount5,000 kr.
Mamman
Amount5,000 kr.
Droplaug Ólafsdóttir
Amount1,000 kr.